30 October Funeral

Julian's cremation service will be on Tuesday 4 November at 13-15 at the Distington Hall Crematorium.

The address of the Distington Hall Crematorium for satnav use is:

Distington Hall Crematorium

Distington

Workington

CA14 4QY

25 October Sad message

Julian died yesterday on 24 October in the presence of his wife Olga and two Hospice nurses at home at 19-45 peacefully and painlessly. He will be always loved and always remembered.

20 September Back from the grave

Another day, another blog post. Time for reminasences, time for remorse. Remorse that I didn't spend more time with Olga when we were both well. Missed opportunities. Not enough gardening together, not enough walking together and other small things we could do but didn't value too much when they were available.  Brain tumor was an excuse not spend time together. At least now it is time to tell about my feelings what I usually avoided doing before or just was ambarassed to show real myself. Now I worry only about not saying often enough to Olga how much I love her and eventually I hope I deserve her.

15.08.2014 Good news

Yesterday our GP called with the welcome news that between my last two scans there had not been any change. No growth. We will still receive visits from carers. We will have to change to a cheaper care agency. From there on we would have to pay for visits of carers, I will still need daily visits because I will be bed bound 24 hours a day.
All donations will be made to our PayPal account. And we want to say thank you to all people who kindly made donations already. 

1 August Assessment

Today, we learned that my case for home nursing care will no longer qualify for NHS funding. If we are going to continue with the same NHS paid carers it will cost 115 pounds a day. It is with Olga's assistance twice a day. Or 138 with complete care from care service. It is crazy. We are trying to review our schedule of care to reduce these numbers. Unfortunately our friend carer  hasn't returned still from Ukraine where she went because of family matters.