Contributors

7 July - We meet our Macmillan Nurse

Another night with not much sleep. But feeling reasonably well and alert in the morning. Spent a couple of hours playing with my radio "toys" and ordered a new Android Smartphone so I can get rid of the ghastly Windows Mobile that prevented me from accessing email when I was in hospital.

After lunch had a meeting with the local Macmillan Nurse. This was extremely useful. For the first time, someone sat down with us who had the time to answer all of our questions. She was also able to tell us of the various other support services available, which include Hospice at Home and respite care to relieve Olga should I become so ill that she daren't leave me. All free, either through the NHS or charitable organizations. I was really quite impressed.

I can apply for a disabled parking card that will allow anyone who takes me somewhere by car to park in reserved for disabled spaces. Apparently I am then also entitled to a free bus pass! I am even entitled to claim a disability benefit - though I gained another unwelcome insight into the way the professionals view my case when I was told that payment would be expedited under a special rule for patients that are not expected to live for six months!

The nurse gave us some more information about the actual treatment. I had read that radiotherapy makes you feel tired, but she said that "it will make you feel tired as never before." Many people just crawl into bed after treatment. So it is likely that the next couple of weeks before treatment begins will be the best couple of weeks I will have for a while, at least.

What seems most important to me now is to make the most of these few days when I feel in a state of dreamlike well-being, to enjoy them as much as possible.