tag:blogger.com,1999:blog-513554479106327392.post7792707778270167738..comments2023-11-22T12:58:39.862+00:00Comments on One Foot in the Grave: 26 April - Off the steroidsAnonymoushttp://www.blogger.com/profile/11984840704237681015noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-513554479106327392.post-48764745872016279272012-04-27T07:59:50.984+01:002012-04-27T07:59:50.984+01:00Thanks Julian, We have contacted the Macmillan nur...Thanks Julian, We have contacted the Macmillan nurses.<br />I did the exact same you did, printed papers and gave them to the doctor. We should be meeting them later today. <br />We'll see what today brings<br />KevKevDhttps://www.blogger.com/profile/00057225312357746749noreply@blogger.comtag:blogger.com,1999:blog-513554479106327392.post-2271865925867399372012-04-26T18:46:45.985+01:002012-04-26T18:46:45.985+01:00Kev,
I think on the NHS you are entitled to ask ...Kev, <br /><br />I think on the NHS you are entitled to ask for a second opinion. Have you contacted the Macmillan nurses in your area? They can be very useful.<br /><br />Treating brain tumours is an off-label use for clomipramine and some oncologists aren't keen on it. I am getting it prescribed by a sympathetic GP. I printed off some of the papers linked from my blog and highlighted key points to explain why I wanted it.<br /><br />Good luck!Anonymoushttps://www.blogger.com/profile/11984840704237681015noreply@blogger.comtag:blogger.com,1999:blog-513554479106327392.post-36692967642167588012012-04-26T12:48:02.635+01:002012-04-26T12:48:02.635+01:00Julian, best of luck to you. I have not had the ch...Julian, best of luck to you. I have not had the chance to read back but will do. The reason I found your blog was my brother Andrew (37) was diagnosed with a brain tumour 3 weeks ago. They are not sure if it is glioma or lymphoma - they cannot biopsy due to location. We are due results of latest scan tomorrow and i have been researching what can be done if it is glioma (docs told us only palliative care would be given) - found chlomipramine, and in turn found your blog. I have spoken to his doctor earlier in the week and will speak to neurologist tomorrow about treating him with chlomipramine. If you think of anything I should know/ask, please let me know if you can.<br />Many thanks and best wishes<br />KevKevDhttps://www.blogger.com/profile/00057225312357746749noreply@blogger.com